I’m part of a Facebook group for parents of children with spina bifida. We talk a lot about our kids’ poop (really), because that’s the focus, but a lot of things can come up. One of the things that comes up once in a while is a post from expecting parents who just found out […]

via Lucky — Beautiful Detour

3 thoughts on “Lucky

    1. Maybe I’m wrong, but I just think it’s insincere. I remember hearing or reading about a parent who said something like, Oh, I don’t wish she didn’t have it, it makes her who she is. I guess I get that–our trials and challenges shape us–but why wouldn’t you want to spare your child any extra pain? And how many times have I heard the adage, Your child is NOT defined by SB. Your child is simply your child, who happens to have this disability. I don’t encounter a lot of parents with this attitude, but I have heard it, and it just kind of threw me. Thanks for reading!


      1. Right, and every person is different, but l agree that wanting a child to be free of obstacles is a more honest statement by a parent. While it’s wonderful that parents embrace their children who have a disability, l do believe most went into parenting picturing a child without disabilities, which is why there is such shock when they learn (via an ultrasound or at birth) that their baby does have a disability. No one goes into a pregnancy preparing for “bad” news.

        Liked by 1 person

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